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Something is killing our kids and its not human. MPS VI is not a joke. It is a devastating genetic disease affecting 1 in 300,000 live births in America. Shafon Faith Seeden is one of them. She is an 18 year old girl who was not suppose to live this long but who continues to triumph over seemingly unbeatable obstacles. The Seeden family is very secure in their faith in God, and each day the hope of Shafon living a regular life becomes more of a reality or does it? Shafon: An MPS VI Story is a documentary that explores the many trials that one young lady must face each day. What we take for granted, she looks at with wonder.