Lonnie White suddenly develops strange, painful bumps on his head, face, armpits, and then groin area that ooze. After facing almost two decades of misery, he is eventually diagnosed with a rare form of Hidradenitis suppurativa. Out of the blue, Theresa Rachlin has bizzare vision loss during and after her pregnancy, headaches that somehow disappear, ringing in her ears, and dizziness. It turns out that she has a rare disorder called Susac's Syndrome.moreless
I have had this problem since I was 12. I am now 58. This is the first time that I have seen anything about hidradenitis on TV. Like the man in the show, I felt his pain, frustration, and despair. To this day there is still no cure or treatment for this nightmare. There was a glimmer of hope when they first started using biologics like Humera but they don't provide any help for most of us. I wasn't diagnosed until I was 17. He was right. It was such a huge relief just knowing that it had a name. I'm finally on pain meds. It doesn't make it better but at least I'm not a shut in and have many days without severe pain. I have a semi charmed kinda life now. .. But then. . Everything is relative...moreless
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